Cover -- Table of Contents -- Section 1: The development of community living: Trajectories and turning points -- 1.1 Introduction to the book and to the development of community living (Jan Šiška and Julie Beadle-Brown) -- Overview of the book and its aims -- A note on terminology -- Documenting trajectories and turning points towards community living -- Quality -- Making system change -- Introduction to Section 1: The current situation for people with disabilities -- What do we know in terms of the current situation of people with disabilities and the implementation of the UN Convention? -- Outline of this section -- References -- 1.2 Deinstitutionalisation and community living: The past, the present and the future (Julie Beadle-Brown, Milan Šveřepa, Jan Šiška with contributions from the late Jim Mansell) -- Interview with Jim Mansell -- Interview with Milan Šveřepa -- 1.3 25 years after deinstitutionalisation - current status of community living in Norway (Jan T�ssebro) -- Introduction -- Background -- Arguments - the critique of institutional care -- The second phase of deinstitutionalisation - full dissolution -- Experiences during the reform years -- Much improved housing conditions/living arrangements -- Family: from opposition to support -- More self-determination in everyday matters -- The revolution that "disappeared" -- Beyond the reform years -- Understanding the long-term outcomes -- Concluding remarks -- References -- 1.4 The current situation regarding personal assistance and independent living in Sweden (Johanna Gustafsson) -- Introduction -- Personal assistance and assistance allowance -- Self-determination - an important principle -- Financing and the cost of personal assistance -- Personal assistance workers -- Use of personal assistance and assistance allowance -- Hours of assistance -- The meaning of personal assistance.

References -- 1.5 Ireland's journey to a person-centred approach to disability support services (Christine Linehan) -- Introduction -- Historical context -- Developments in Irish disability legislation -- Developments in Irish disability policy -- Developing standards -- Implementation and monitoring -- Conclusion -- References -- 1.6 From hospitalisation to (de-?) institutionalisation: The challenges of implementing Art. 19 in Austria (Gertraud Kremsner) -- A (very) brief history of institutionalisation -- The current status quo: Challenges in implementing Article 19 of the UN-CRPD -- Conclusion (and limitations) -- References -- 1.7 Independent living and community inclusion in Brazil (Flavia H. Santos, Luciana M. Fonseca, Eder R. Silva) -- Contextualizing disabilities in Brazil -- Ratification of the Convention on the Rights of Persons with Disabilities in Brazil -- The importance of self-advocacy -- Policies on deinstitutionalization -- Inclusion in the education system -- Inclusion in the workforce -- Final considerations -- Conclusion -- Acknowledgements -- References -- 1.8 Towards community-based disability support services in Czechia: nearly there? (Jan Šiška and Pavel Č�aslava) -- Introduction -- Quality of social services and direct payments -- Deinstitutionalisation -- Summary -- References -- Section 2: Defining, measuring and ensuring high quality services -- 2.1 Definitions of quality and the importance of measuring and focusing on service quality (Jan Šiška and Julie Beadle-Brown) -- Introduction to defining, delivering and measuring high quality of life -- Structural and process factors -- References -- 2.2 Ensuring quality - the living conditions approach in Scandinavia (Jan T�ssebro) -- Introduction -- Why was a living conditions approach chosen? -- What about the alternatives? -- On the living conditions approach.

Adaptation to the life circumstances of intellectually disabled people -- Current status -- References -- 2.3 Active Citizenship as a measure of outcomes and the quality of social services (Š�arka K�aňov�a, Jan Šiška and Julie Beadle Brown) -- Introduction -- Citizenship and disability -- Researching active citizenship through community living and participation -- Living situation -- Choice over living situation -- Support for living in the community -- Participating in the community - social relationships and social inclusion -- Conclusion -- References -- 2.4 Ensuring quality in practice - person-centred approaches (Jill Bradshaw) -- Introduction -- Person-centred approaches -- What does person-centred mean? -- What are the different elements of a person-centred system? -- Person-centred planning -- What do we know about the impact of person-centred planning on outcomes? -- Person-centred action -- Person-centred active support -- Why is active support important? -- What does person-centred active support look like? -- Is active support useful outside of settings supporting people with intellectual disability? -- Is person-centred active support effective? -- Positive behaviour support -- Why is positive behaviour support important? -- What does positive behaviour support look like? -- Is PBS useful outside an intellectual disability setting? -- Is PBS effective? -- The SPELL Framework -- Why is the SPELL Framework important? -- What does the SPELL Framework look like? -- Is SPELL Framework useful for people other than those who are autistic? -- Is the SPELL Framework effective? -- Support for communication -- Why is support for communication important? -- What does good support for communication look like? -- Is support for communication relevant to those who do not have intellectual or developmental disabilities?.

Is good support for communication effective? -- Conclusions and implications -- References -- 2.5 Promoting independence and safety with medication technology for people with disabilities (Alaina Gallagher, Seunghee Lee, James Houseworth, and Betul Cakir-Dilek) -- Introduction -- Issues in medication management -- Use of technology to support medication adherence -- Case study -- Dose Health -- Conclusion -- References -- 2.6 Personal assistance as a support for the quality of life of people with disabilities (Magdalena Hankov�a, Soňa Kalenda and Julie Beadle-Brown) -- Introduction -- Personal assistance in the Czech Republic -- Participants and data collection methods -- Findings of the study -- Conclusion -- References -- Section 3: Making change at the systems level - what is needed for succesful implementation of the UN-CRPD -- 3.1 Section 3 Overview: Introduction to system wide change (Julie Beadle-Brown and Jan Šiška) -- References -- 3.2 Balancing the rights of respect for autonomy and protection from harm: Lessons from the Mental Capacity Act 2005 (England and Wales) (Camilla Parker) -- Mental Capacity Act 2005: Overview -- Recognition of the right to decide: Challenging assumptions -- Supporting the person's decision-making -- Respecting the person's views -- Conclusion -- References -- Cases -- 3.3 Definitions of and barriers to high-quality services and support, particularly in the context of independent living in Sweden (Johanna Gustafsson) -- Introduction -- Quality in personal assistance -- Performing personal assistance -- Assignments for personal assistants -- Good living conditions - an outcome of personal assistance -- Accessibility, a holistic viewpoint and continuity of personal assistance -- Influence, participation and self-determination in personal assistance -- Are the intentions of personal assistance fulfilled today?.

References -- 3.4 Exploring the intellectual disability data landscape for policy and service directions: An Irish perspective (Mary-Ann O'Donovan, Sarah Craig, Philip McCallion, Mary McCarron and Elaine Byrne) -- Introduction -- Definitions and demarcation -- Case study: Ireland -- Disaggregating data -- Q1. Is the broad category of intellectual, interpersonal and learning disability a good predictor of service use and need? -- Demographic profile -- Health profile -- Help with everyday activities and activities of daily living -- Use and need for services -- Considering co-morbidity in data -- Q2: does having multiple disabilities result in differing service use and need? -- Q3: does survey and administrative serve to contradict or complement the evidence base for service providers? -- NIDD 2006 compared with NIDD registrations as per NDS 2006 -- Health service access -- Discussion -- Conclusion -- References -- 3.5 Measuring outcomes of people with disabilities in the US: Current challenges and opportunities (Ren�ata Tich�a, and Brian Abery) -- Introduction -- Long-Term Services and Supports (LTSS) and Home and Community Based Services (HCBS) -- National Quality Forum (NQF) measurement framework -- Purposes of outcome measurement -- Compliance with HCBS policies and quality improvement -- Quality of service delivery -- Measuring outcomes of people with disabilities -- Importance of person-centered measurement -- Improving measurement quality: The Research and Training Center on HCBS Outcome Measurement -- Challenges of HCBS outcome measurement -- State and Federal Level: Compliance and Quality Improvement -- Provider agency/managed care organization level: Quality of service delivery -- Individual level: Personal outcomes -- Future directions: Opportunities to improve HCBS outcome measurement.

State and federal level: Compliance and quality improvement.

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Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2024. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.